Welcome to Sevinç Nur’s page, who suffers from SMA Type-1.

You can see our campaign approved by the Governorate on the website of The Ministry of Interior the Directorate General for Relations with Civil Society, with the activity number 21-711 and the name of the father “TURAN İNGİN”.

https://www.siviltoplum.gov.tr/yardim-toplama-sorgulama

Sevinç-Nur-8.1

About The Sevinç Nur Campaign

Sevinç Nur, born on 09/06/2020, was diagnosed with SMA Type-1 when she was 4 months old. SMA Type-1 is a rare fatal muscle disease. In this disease, the body does not produce the protein necessary for nerve function. The muscles become weaker, weaker and melt down. Sevinç Nur, who is affected by Type-1, the most severe and deadly form of SMA, has difficulties with moving, swallowing, sitting and holding her neck. Please click here to access the health report. Unfortunately, treatment of this disease is only possible with the gene therapy “Zolgensma”, which is available abroad. Zolgensma is a gene therapy that replaces the function of a missing or non-functioning gene with a new, functioning copy. The cost for this treatment is $1.88 million. We have started a campaign approved by the Governorship of Istanbul to achieve this treatment. If the amount raised for our daughter Sevinç Nur cannot be used, it will be given as a donation to another SMA child.

Spinal Muscular Atrophy (SMA)

Spinal Muscular Atrophy (SMA) is an inherited disease that affects nerves and muscles, causing them to become progressively weaker. It mostly affects infants and children, but can also develop in adults. Symptoms and disease course vary depending on the type of SMA. Gene replacement therapies have been a new hope in the fight against the disease in recent years.

Account Information

TL (₺)

  • Recipient’s Name: SEVİNÇ NUR İNGİN
  • IBAN: TR92 0006 4000 0011 0254 5729 13

USD ($)

  • Recipient’s Name: SEVİNÇ NUR İNGİN
  • IBAN: TR22 0006 4000 0021 0254 1594 93
  • SWIFT: ISBKTRISXX

EURO (€)

  • Recipient’s Name: SEVİNÇ NUR İNGİN
  • IBAN: TR86 0006 4000 0021 0254 1595 05
  • SWIFT: ISBKTRISXX

Make Your Donation Safely

You can see our campaign approved by the Governorate on the website of The Ministry of Interior the Directorate General for Relations with Civil Society, with the activity number 21-711 and the name of the father “TURAN İNGİN”.


https://www.siviltoplum.gov.tr/yardim-toplama-sorgulama

You can see our campaign approved by the Governorate on the website of e-government gateway, with the activity number 21-711 and the name of the father “TURAN İNGİN”.

https://www.turkiye.gov.tr/icisleri-ddb-yardim-toplama-yetki-sorgu

Volunteer!

Sevinç Nur needs volunteers to win her battle with SMA TYPE-1!

Volunteer! Let the campaign end sooner! Let Sevinç Nur win, not SMA!

Join Our Campaign!

You can contact us by filling out the form. We will get back to you as soon as possible.





    !!! 100% | BREAKING NEWS | 100% !!!

    Together, we stood strong in solidarity and made a difference!

    Sevinc Nur Won! 

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